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Twisted Pink…

The losses to the MBC community, of Champagne Joy and Beth Calabotta, this week have broken my heart. I’m in a bit of shock over it honestly. But, when I get sad or even cry about it – I am immediately aware of how much they both would have hated that. What they would have loved is for me to continue to raise money and awareness for MBC research and to keep honoring and celebrating others who are doing the same.

I was so touched by the outpouring of support and comments from so many of you about Beth and Champagne. Thank you for taking the time to share your respect for them and your thoughts with me. I am honored to continue doing the work they both started. Unfortunately, I can not travel to DC next week as hoped due to my recovery from recent surgery. However, I am used to fighting this disease from my couch and that is exactly what I will do for now.

You know how when you meet someone new, you immediately know when you are connecting with another person who is generous and like-minded and out to promote you and your goals as much as their own? Laws of attraction have a way of bringing these kind of people into my life these days and I am so honored to introduce you to one of them today.

Please Meet Caroline Johnson, Founder of Twisted Pink…
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Twisted Pink, is a non-profit organization based in Louisville, KY whose mission is to cure breast cancer by funding metastatic breast cancer research while exposing the hidden statistics about the disease.

Caroline was 39 years young in June 2013 when diagnosed with stage III ER+ breast cancer. She became an advocate for research after her youngest son was born with an extremely rare chromosome deletion in 2005.  This condition was the cause of her son being born deaf/blind.  He would later experience developmental delays and Epilepsy.

Caroline started Twisted Pink in June 2014 after completing chemotherapy, radiation and several surgeries.  She saw a need to do something for the men and women who were being left behind the pink ribbon!

When diagnosed with breast cancer a month prior to her birthday, Caroline’s friends honored her by gifting her a necklace with the letter “c” engraved on the disc. Caroline’s friends purchased identical necklaces in her honor and wore them during her year of treatment as support. The letter “c” was supposed to signify Caroline’s name but quickly became a symbol for Christ, who Caroline attributes to helping her get through her treatment and who continues to be the inspiration of Twisted Pink and Caroline’s work as an advocate.

Twisted Pink has raised over $420,000 for metastatic breast cancer research since opening in June 2014. WOW! In 2017 Twisted Pink will focus on collaboration with organizations sharing similar missions to change the outcome for people facing a metastatic breast cancer diagnosis.

I am so honored to announce that Caroline and I, and Lara MacGregor from Hope Scarves, will be joining forces to form The MBC Consortium, and pooling resources to move the needle toward better MBC treatment faster, together! Stay Tuned!
CLICK HERE TO DONATE
The Cancer Couch Foundation PO Box 1145, Southport, CT 06890
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Disclaimer: Please note, the opinions and advice provided here are not meant to replace the guidance of your personal health care team, with whom you should always consult before making significant diet, exercise, or lifestyle changes, or for any individual medical or mental health concerns.
  • Home
  • Foundation
    • About >
      • Contact Us
      • Our Founder - Rebecca's Story
      • About The Cancer Couch
    • Mission
    • TCCF Team
    • Financials
    • Where The Money Goes
    • Research Teams >
      • Memorial Sloan Kettering Cancer Center
  • MOMbies
  • Fishhawk Mombies
  • Cappetta & Pepe Fundraiser
  • Bake It Happen
  • Par 4 The Cure 2025
  • The Cancer Beat - 8
    • Cancer Beat 8 Photos
    • Cancer Beat 8 Sponsors
    • Cancer Beat 8 FAQ
    • Past Cancer Beat Highlights >
      • Sizzle Reel 2017
      • Sizzle Reel 2018
      • Sizzle Reel 2019
  • Tom & Brett's Wedding
  • Fundraisers
    • Andy Gleeman
    • Reason4FreezinMBC
    • A Night of Hope 2022
  • Blog
    • Interviews >
      • Diligent Docs >
        • Sarat Chandarlapaty, MD
        • Corrie Painter, PhD
        • Patients with a Purpose >
          • Beth Calabotta
          • Cathy Esposito
          • Caroline Johnson
          • Renee Chmiel
          • Maimah Karmo
          • Amanda Cokes
          • Dr. Corrie Painter
          • Susan Rahn
          • Dr. Nancy Rapport
          • Caryn Sullivan
        • Nikhil Wagle, MD
      • Loved Ones Who've Lost Someone to Breast Cancer >
        • Shari Brooks
        • Judith Kelman
        • Carrie Kirkella
        • Dr. George Stohr
    • Diagnosis & Treatment
    • Saving My Hair Through Chemo
    • Putting The Fun in Fundraising
    • Life With Cancer >
      • Life is Fun...
  • Media
    • Media Kit
    • Videos
    • Articles
    • Audio
  • Resources
    • Treatment Tips >
      • Treatment Journal
      • How To Keep Your Hair
      • Organic Beauty
    • Support Connection
    • Breast Cancer Trials
    • Breastcancer.org
    • HairToStay
    • The Metastatic Breast Cancer Project
    • METUP
    • METAvivor
    • The Metastatic Breast Cancer Network
    • Underbelly
    • Sharsheret
    • Share
    • UnaEnOcho
    • Wildfire Magazine